Max's recovery has been a bumpy road but that is expected after open heart surgery. The main source of discomfort for Max has been headaches. Since he is so swollen the nurses said that he is experiencing his first migraine- poor guy. Lights, noises, touch... he is sensitive to everything and quite cranky. As the swelling goes down, so will his pain.
He is on a special formula now that is low fat and high protein. It tastes awful. In fact, one of the nurses said that at one point the hospital staff did a taste test of all the formulas that patients receive and the one Max is on was the worst of the bunch! We have to try to feed him a bottle and whatever he does not finish is given to him through a feeding tube. Most likely we will go home with the feeding tube since he needs to stay on the formula for at least a month.
Max has been transferred to the pediatric ward which means the doctors feel he is doing well. We are not sure how many more days we will be in the hospital. Right now we are just trying to keep Max as calm and comfortable as possible.
This is me feeding Max for the first time. 
We can hold Max now but as you can see in picture it isn't easy or very comfortable with all the wires and monitors attached to him.
Today the swelling has gone down a lot and Max has been awake more. He is starting to look more like himself. His eyes still look very sad but soon enough we will have our happy boy smiling back at us.
Morgen was able to visit Max today. Morgen was more excited about pushing the buttons on the TV remote then seeing Max but it still felt great to have both of my little boys together for a few minutes. 
Hopefully the next few days will be full of rest and we will be home soon!
We can hold Max now but as you can see in picture it isn't easy or very comfortable with all the wires and monitors attached to him.Today the swelling has gone down a lot and Max has been awake more. He is starting to look more like himself. His eyes still look very sad but soon enough we will have our happy boy smiling back at us.Morgen was able to visit Max today. Morgen was more excited about pushing the buttons on the TV remote then seeing Max but it still felt great to have both of my little boys together for a few minutes. Hopefully the next few days will be full of rest and we will be home soon!
9 comments:
Oh gross. I know exactly what formula you are talking about (monogen?), and it's pretty terrible. Also, if you go home with a feeding tube, it's not nearly as difficult or scary as it might look.
Hang in there, guys! Max really is looking more like himself, which I'm sure is so comforting to you. I'm sorry that he's been experiencing so much pain and discomfort ... and to top it off, has to eat yucky food! He's a trooper, and so are all of you!
We love you!
Monica & boys
What a trooper that kid is! So glad that he is doing well...hopefully his headaches will go away soon. We're thinking of you.
Glad to hear he's in a real ward now. And now I know why Abigail was always so sad when we moved her after her surgery. Headaches. Poor kids. It can't be fun. But it's good to know those will go away once the swelling goes away.
I hope the swelling goes down soon so his poor headaches will go away. That can't be fun. I am so glad that he is doing well though! He is one strong little guy!
He does look a lot better! We'll continue to keep you in our prayers!!
He looks great--I only hope he starts feeling great soon. Those gorgeous eyes--so good to see them shine. Hopefully those smiles will shine out soon too!
You continue to be in our prayers every day. I'm glad to hear that recovery is going well. Hopefully you will be home soon.
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